Tuesday, June 22, 2010

Well I lit up like a jar of fireflies....

Well this morning Jamie and I went to see Dr. Tian to discuss the PET/CT results, and it was pretty much as I had figured, I lit up like a jar of alabama fireflies. Granted, the contrast they give you is like a sugar, and it glows like crazy in organs that metabolize sugars and junk like that..if you know me at all I love me some sugar! He did say that there is some activity in the adrenal glad, and spleen I think, an a bunch of lymph nodes, but there really good news is that they are all still very small, less than a centimeter, and they don't seem to be causing any "extra" issues at this point. So the current course of action is to finish the WHole Brain Radiation on Wednesday. I'm going to schedule myself to have a port-a-cath placed in my chest next Monday, so as soon as I'm done with the brain stuff, I'll be ready for the first batch of chemo that will hopefully star Thursday or Friday, or maybe sooner. We're still learning the lingo around here, gotta figure out, what a course is, is it one treatment, or several, a line...same question.. This is definitely a learning curve, but Im sure it'll all get itself worked out. Once adain, Dr, Tian and Dr. Dubal are on the same page with the chemo, and they have been really wonderful doctors to have in my corner. They are so positive, and all smiles, even when confronted with the occasional mini-meltdown from they're usually positive patient!! So they are both coming highly recommended from me, not that I'd actually ever hope any of you will have to use them, but highly recommended they come!! Well I might try to post some more later. But for now, I'm gonna rest a bit.

Bon Conrage eveyone!!

7 comments:

  1. you've got a helluva dragon to slay. you and your army are going to do it - the plan is unfolding each day.

    remember the flying dragons on Pandora? That took Bon Courage too.

    ReplyDelete
  2. and the army keeps getting bigger so I see. ;-)

    ReplyDelete
  3. you are always in our thoughts.

    ReplyDelete
  4. A good strategy is essential to winning a war! The troops are ready!!

    ReplyDelete
  5. I know all about the learning curve. I'm one of those patients that wants to get as much information as I can process. It's so hard when it's something as complex as oncology. These doctors have been at it for years and years, and studied it for years and years before that. My biggest frustration was that even though they were great about explaining things, I still wanted to know more and grasp as much as I could.

    I'm with ya girl. Hang tight.

    ReplyDelete
  6. Well, the news is certainly a mixed bag, but knowing is better than not knowing. As for that learning curve, it is a steep one but not insurmountable. There's lots of solid, good information on the web at the Mayo Clinic website--all very user friendly. This link explains what chemotherapy is, but it has links to a number of articles that explain many many other aspects of chemotherapy. http://www.mayoclinic.com/health/chemotherapy/MY00536

    All my love to you, Jamie and the boys.

    ReplyDelete
  7. Speaking of sugar, at a time like this, a good cobbler is a must. Do you like blackberries? Here is a good recipe which I can vouch for because I just made it the other day: http://thepioneerwoman.com/cooking/2007/08/the_great_cobbl/ It will only take you a few minutes to whip up. The kids can help.

    Meanwhile, about that jar of fireflies... I am sending healing energy your way. Those dang fireflies have no chance against all the mojo coming its way.

    ReplyDelete