I was on such a high from spending time with Jamie, that maybe I just emotionally over-did it, or I just needed more pain meds, Either way I woke up this morning, feeling CRAPPY, my legs huts so bad, more in my upper thighs. I slept most of the day, so there was little or no creative juices flowing like I had hoped. Breakfast and Lunch, were OK, but kind of a blur. I ended up getting an ultrasound of my legs to rule out blood clots. none, which is good. One less thing. Dr. Cash, sweet woman, told me she was gonna up my long acting morphine, to control pain, and because the decadron steroid has giving me the "sugar" for sure, so tomorrow the are gonna show me how to give myself insulin shots at home. And the want to wean me off the IV pain meds so I that will also help me get home. She really wants me outta here by Wednesday morning, to keep my set appointment with my original oncologist, that ironically I haven't seen in 3 weeks. Does't that sound strange. ANyway, I'm suppose to meet with him at 9am and then get my next round of chemo at 11am that day. SO I've now been in here 8 days, and frankly, I'm getting sick of being sick, especially in this hospital. Dr. Cash, did tell me to check to make sure my insurance would pay to have me at Baptist East, which is right by the West Clinic. That way if I had to go to the hospital, I would be ale to see Dr.Tian, because that's where he does rounds. SO tomorrow, I'm hoping to still feel better and resume "worker-bee" mode, and get some offical work and medical stuff under way.
Gonna try to do everything they want, so I can get the heck back to the house and see my family in person. I truly believe home is the best place to be!
Jamie is gonna take Gusto by the middle-school tomorrow to check it out, and maybe get him enrolled in band. I really want him to have some normalcy, so please keep him in your thoughts, I know how hard all this is for him. After all he's only 11 and my best friend. Being away from him him so much is probably the hardest part of my day. I can talk to Jamie on the phone, or text, and Hopper is so little and thankfully oblivious to all this. I know he misses me being there, but luckily, baby mode kicks in, and he he happily lives up to his "Hopper" name! But it's much harder with Gus. I want to spend time with him, so we can talk and I really want o know what he's thinking and feeling, bu I don't want him t be scared. I'm not scared, i'm sick, which sucks out loud, but I know I'm gonna be fine, eventually. But how do you explain that to an 11 year old, who sees his momma in a hospital bed for 8 days, loosing her hair and having to take all this medicine. That is the hardest part.
Anybody out there have any advice on that subject? I am going to check tomorrow with the West clinic, I'm thinking they have someone there to help me explain things to Gus and myself. Lets hope so, but I feel sure they do.
In the mean time, I also want you all yo know how much I enjoy reading your comments on this this blog and on face book, and email. I may not answer ever post or inquiry, but I appreciate each one!